Chapter One

Nate and Jude

Friday, June 26, 2015

Chicago, Illinois 

Jude

I exit the ‘L’ and start jogging. I get too nervous walking, so I jog across Daley Plaza, toward the Picasso, looking through the couples, the supporters, the flags and banners, the people celebrating. Looking for a man with reddish-brown hair.

Inadvertently, I slow to a walk. This is nuts. I never envisioned feeling like this. Like a thirteen-year old with his first kiss. It’s not like I don’t know him, or we just met last week. We’ve been together three years and this isn’t a last-minute decision on my part. Today’s news pushed me through my hesitation, my procrastination, reminded me of Lacie’s words. Words that brought us together in the first place. Still, asking someone to marry me is a big move. I haven’t thought about rings. We can figure them out later, as we go along. Like we have with everything else in our life together. I bet he’ll be surprised.

I realize I’m walking and start jogging again.

Nate

I start humming. I do that when I’m nervous. I’m waiting at the East end of the Picasso, with my Pride flag. Ordinarily I’d be chatting to people, making funny-eyes at the little kids staring at me, making them smile, but not today.

The rings are tight on my finger. I designed them, and my friend made them. They’re ceramic. I’ve had them for two months, not sure why I was waiting to ask him. When I heard the news late this morning, I knew today was the day.

I hum some more. I want to break out singing. A show tune, maybe Some Enchanted Evening, in honor of the first time we met as adults. Now that would be funny. Singing would relieve my stress, but would also draw attention, which I don’t need, we don’t need. I didn’t think asking him to marry me would make me this jittery. We’ve been together three years. Still, it has, and I am. I wonder if he will be shocked. I’ve managed to keep the rings hidden, which is amazing.

I hum some more.

Chapter Two

Nate

Nate McGuire, Age 8

October, 1996 – Suburban Chicago

Me and Mikey are going to a healing service. We’re singing camp songs in the back seat of my mom’s Jaguar. I’m trying to sing in my quiet voice, which Mom says is my loud voice anyway.

John Jacob Jingleheimer Schmidt…the people always shout…dah.

We sing the first round. Mikey taps my shoulder so I look over at him. He winks and points his first finger up. Not his second one, he’d get in big trouble if his mom saw him doing that. Her name is Judy Howard. She’s in the front seat, talking God stuff with my mom. My mom’s name is Krys McGuire. I nod. I know he means we’re going to sing the second round loud, lots more loud.

We holler out, my throat even starts to hurt. John Jacob Jingleheimer Schmidt!

“Boys. Boys. You must sing quietly or not at all,” Mom yells back at us. “Nate, your voice is far too loud, now quiet down. Judy and I can’t hear ourselves think.”

She’s smiling so I know she’s not mad. She hardly ever gets mad, just nervous and concerned about me being disabled. She usually calls it handicapped. I have CP, Cerebral Palsy. When I was little and didn’t talk good, I told people I had Tee Pee, tea-a-bull-pawlly.

Now, when people stare at me in my wheelchair, I say real nice, “My name is Nate, I have Cerebral Palsy and I’m a spastic quadriplegic. Do you have any questions I can answer about my condition?” Most people don’t. I think they’re surprised I can talk and think. Usually they act like they want to get away from me. One time at the mall, a big kid said he wondered why my parents took me out in public. He said I looked ugly and messed up. Only he used the ‘F’ word. I gave him the finger with my right hand. I have pretty good control with my right hand, but not with my left hand, or my legs. My big sister, Lacie, she’s thirteen, ran up to him and yelled she’d beat the crap out of him. She really said s-h-i-t. Then Dad took us home and sent us to our rooms.

Mikey looks at me funny. His eyebrows are raised up. I remember I’m supposed to give Mom an answer. “Okay, Mom. I’ll try not to yell. Hey, Mikey, let’s sing the This Land song, only I don’t know all the words.”

“Oh,” says Mrs. Howard. “That’s by Woody Guthrie. I love that song.”

Mikey starts out in his inside voice. This land is your land…I catch up with him. This land is my land. Mrs. Howard starts singing with us. From the redwood forest…That’s as far as I can remember. Mrs. Howard keeps singing. Mom joins her and they sing all the words. Mikey and I listen. I like their voices. They sing good together.

After that, it’s quiet for a while. My mind starts to be a little nervous. We’ve never gone to a healing service before, or even talked about one. But Mom got borned again, or saved, or something like that. Now she’s sure I can be healed because she believes God can do it. She’s been praying over me every night since school started. Does getting healed mean I’ll walk like normys—normal kids? Will my legs and body still be stiff or jerk? Will I still need surgery for my twisty feet and legs? And when I get real big, for my back? ‘Cause it’s slowly getting crooked. I know I don’t need my head healed. I talk good, too good, and way too loud. My mom and dad and Lacie and school teachers all say that.

Mikey told me getting healed was bull-s-h-i-t. That’s what his dad said. His mom got interested after listening to my mom, so that’s why they’re coming along with us. Mikey has MD, Muscular Dystrophy. He looks normal, other than he can’t run fast like he used to. He isn’t as strong, and his back sways a little. He still pushes me around in my wheelchair. People with MD die young, usually when they’re young-growed-up, like twenty or thirty. Sometimes they die just when they’re teens. Like the age of his big brother Jon, he’s nineteen. But not Lacie’s age, she’s thirteen. People with CP don’t die young. Maybe Mikey should get healed before me.

Mikey and me met at camp. Lakeside Camp for Crippled Children. I was still eight, he was nine, and we were in Robin, the youngest boys’ room. Mom was afraid to send me to camp. She said I was too young and too handicapped and two weeks was too long and the place was too old and the staff too unprepared. Everything was too wrong. Dad said it would be a good experience for me. He told Mom the camp was highly recommended by my school’s Special Ed director. He said she told him she didn’t like the word crippled in the name, but the staff was great. So, I went.

Mikey and me slept in old metal, hand-crank beds next to each other. It was his first time away from home, too. It was so gnarly! Mikey pushed me all over, even helped feed me sometimes. We were always together. Everybody called us the ‘Robin Room Twins’. We loved each other so much.  On the last morning, Mikey asked Grunt, one of the counselors, how far Northbrook, that’s where Mikey lives, was from Lake Forest. That’s where I live.  “Well, I don’t think it’s very close,” he said.

“You mean we live a long ways from each other? When will we get to see each other again?” I was scared I wouldn’t see Mikey ever again.

“Well, I bet your parents will send you both back here next summer. You’ll see each other then. That’s the fun of camp, seeing each other every year.” Grunt moved our bags over to the pavilion where our parents would pick us up.

“Let’s go out on the trail. The woods one,” Mikey whispered in my ear.

I nodded. I was feeling so sad inside me. Mikey pushed me through the screen doors out onto the smooth path. No one stopped us or asked where we were going. No one said we had to wait inside till our parents came.

“Mikey, what are we going to do? We live so far away and I won’t see you for a whole year.” I started crying.

Mikey came around the chair. He bent over and hugged me, then kissed me on the cheek. We liked to hug, especially me. Being eight and in a wheelchair, means I don’t sit on the couch and Mom doesn’t hold me on her lap much anymore. I miss it.

I touched my right fingers on his hand and he hugged me again. “Mikey, you’re my bestest friend in the whole wide world!”

He put his mouth next to my ear. “Nate, you’re my bestest, bestest, bestest friend in the whole universe.”

Just then, I saw my parents with this other couple and the camp director walking toward us. Mom hung onto Dad’s arm tight, like she was nervous. The other woman was holding the man’s hand and looked scared, too.

“Hey, Mom and Dad! This is Mikey. He’s my bestest friend in the whole world.”

Everyone was talking at once, asking us why we weren’t waiting with the other kids, saying our moms thought we’d drowned or got lost. The director told them how the whole camp is fenced in and we couldn’t get to the lake or the pool without keys. Our moms were hugging and kissing us like crazy.

Finally, Mom asked, “Nate, why are you crying? I thought you’d be happy to see us.”

“I am, but Mikey lives far away and I may never see him till next summer at camp and I’ll miss him bad.”

“Where do you live?” Mikey’s dad asked mine.

“Lake Forest,” Dad and Mom said at the same time. “Where do you live?”

“Northbrook.” Then everyone started laughing at me, like I cracked a new joke, or said something crazy like I do a lot.

“Nate, we’re close, we live a half hour away,” Dad said. “Who told you we lived far apart?”

“Grunt, the counselor who talks funny.”

The camp director, Ronald, laughed. He told our folks Grunt’s name was actually Gunther and he was from Austria and thought all of our towns in America were far apart.

So, that’s how Mr. and Mrs. Howard got to be good friends with my parents and they make sure Mikey and me have sleepovers every two to three weeks.

“Mom, how much further? This is awfully long. Huh, Mom? What time does it start?”

“We’re pulling in now, and it looks like we’re early. I left in plenty of time, Huntley is a long way from our house.”

“Living Waters Full Gospel Church.” I read the sign out loud as Mom drives in. I’m a good reader.

Mikey helps his mom unload my wheelchair from the trunk. Mom undoes my safety vest and seat belt, swings my legs out, grabs me under my arms, and pulls me to a stand. Next, she turns me and sets me into my chair and buckles me in. It’s easy, but still I kind of wiggle and shake when I’m being moved, sometimes when I’m not. I think that’s why my CP is called spastic.

My mom is strong. She’s tiny, almost five-two. She jogs outside and works out in the exercise room they built when my room was added on. She has short dark brown hair and huge brown eyes and she smiles a lot and is always busy. Dad says on a slow day she moves at the speed of light. I don’t know what that means, but Lacie says it means super-fast.

The Soccer Ball

I look around.  We’re in a gravel parking lot. The church seems small and kind of old. It has a long wooden ramp for wheelchairs going up the front. Mikey points to a grassy ball field with old wooden posts and a rusty fence backstop. Several kids are kicking a soccer ball around.

“Go over there, maybe you can meet some new friends,” Mom says.

My folks like me and Lacie making new friends. Lacie makes more than me and is always bringing them home. She usually invites me to be with them, unless I get too loud. She says I’m not cute anymore and don’t need to always be the center of attention. Her friends think I’m cute. They like my freckles and red-brown hair, even my smile and buck teeth. Sometimes they don’t want me around because they’re talking about girl things, like clothes and bra’s and periods and boys. Stuff I already heard about ‘cause Dad answers my questions. Besides, Lacie tells me everything first anyway. Mom don’t talk about stuff like that.

Mikey pushes my chair toward the field. A loose ball rolls toward us. Mikey kicks it back toward the boy chasing it. The boy stops it. Two other boys and a girl come up and stand by him, they say their folks are the musicians, that’s why they’re early. All of them stare at me, then Mikey.

“Wanna play?” the tallest boy asks Mikey. He doesn’t look at me.

“Nah, I can’t do much running, but I’ll pass it back to you.”

The kid foots a pass to Mikey. He passes the ball to one of the other kids, who sends it back. Mikey picks it up with his hands.

“C’mon,” one of the kids says. “C’mon out on the field and play. You won’t have to run much.”

“Nah, I don’t want to leave Nate.”

“He’s just a cripple, probably retarded, and can’t do anything but sit there anyway.”

I don’t answer him. He’s the tallest, probably around twelve or thirteen. I want to give him the finger but think that may be bad. We’re near a church.

Mikey winks at me. “Maybe he can do more than you think.”

I know what’s coming. I have good head control for a spastic and do tons of therapy to make my neck strong. Mikey puts the ball in my lap and pushes me onto the grassy field a way. He takes the ball, backs away from me. He double-winks at me, then lobs the ball easy in an arc. I don’t move or speak, just let it bounce off my head. Mikey smiles. My left leg spazzes, then my right. The other kids snicker when Mikey says, “Let’s try again. Now watch closely.”

“Yah, right. Look at him jerk around. You gonna just keep bouncing it off his head so he thinks he’s playing?”

Mikey backs up five big steps. The kids move back with him. The big kid stands next to Mikey with a dumb s-h-i-t grin. Mikey tosses the ball with the same arc. I time it perfectly and head it straight at the kid with the big mouth. It almost smacks him in the face. He ducks and the ball hits his shoulder.

“Wow! That was hit hard.”

“Head it to me.” the girl yells.

“No, to me,” the other boy hollers.

“Can I throw it to him?” It’s the big kid.

“Heck no.” I yell. “You’ll throw too hard. Only Mikey can.”

“You mean you can talk?”

“He gets straight A’s,” Mikey says.

He looks like he wants to say, ‘you moron’, but can’t. I laugh. I don’t get straight A’s. I probably could, but I talk and goof off too much. Dad says he thinks I’m trying to make the other kids laugh at me so they’ll be my good friends.

The girl walks up to me, twisting her hands together. She puts them behind her as if she needs to keep them still. She has long brown braids, wears girly bib overalls, and has a pink flowery shirt underneath the bib and straps. She has freckles, like I do. I think she’s about my age.

“I’m Eve. Are you both here to be healed?”

I nod.

“That’s good, I hope you are. I think it would be terrible to sit in a wheelchair all my life.”

I try to think up an answer. Most people feel sorry for me sitting in a wheelchair. Just then Mikey says, “We’re fine the way we are. Well, other than Nate, he’s a nut job.”

He crosses his eyes at me, a little bit. He always makes me laugh.

“Still,” the girl says, “it would be nice if Jesus healed you so you could kick the ball and throw one, too. Do you have faith?”

I give her a confused look. “What do you mean?” Then I remember Mom talking and praying over me about having faith. So, I add, “Ya, I got faith. My mom prays with me every night about that.”

“You have to be saved, too. You have to ask Jesus into your heart to forgive your sins. It helps if you’re baptized in the spirit, too. Are you?”

Mikey rolls his eyes around, like this talk is nuts. I try not to laugh. This girl seems to care about me. “Yup, I got saved three weeks ago at a different church. I repeated this prayer, and the preacher, or priest, or whatever he’s called, stuck some special oil on me. He said he was baptizing me in the ghost.”

The girl gives me this huge smile like she’s all happy for me.

Getting Healed

Inside the church, Mom sighs when I tell her I don’t want to sit out in the aisle because there are no special spaces for wheelchairs. She pulls me out and sits me on the end of the wooden pew, next to the aisle. We’re near the back, the church looks pretty full to me. Mikey sits next to me, then Judy—Mrs. Howard—then Mom.

Some people go up on the stage and start playing music, soft, not loud. There’s drums, two guitars, a keyboard. I watch a girl wearing a long, plain blue dress, who looks a little older then Lacie, take a microphone. She has a beautiful voice. Father, we adore you…Most people stand up and join in. They sing quiet, not loud like camp songs.

Eve suddenly stands next to me. She pokes me and asks if she can sit by me. Before I can answer, she starts to squeeze her butt onto the seat between me and the end of the pew. I can’t sit up by myself without something to lean against. I lop over toward Mikey who sighs and gives her a dirty look. He scoots closer to his mom, pulls me over and straightens me up.

He whispers, “Watch out, he spits and bites, too.”

Eve wiggles her butt back and smiles at him like she knows he’s kidding. She jumps when my leg jerks but doesn’t seem weirded out. Most kids do.

Mom doesn’t notice. She’s standing with her hands up, waving them sideways in front of her. Most of the other people are doing the same. Her eyes are closed. Her face is looking up. She looks like she might cry.

Judy stands straight and tall, like she’s in the army or something, looking around. Then she sees the words to the song showing on a white wall above the music players. She starts moving her mouth, trying to sing the words. I can tell she doesn’t know them. Spir-it, I a-dore you…How we lo-ove you.

Mikey still sits. He nudges me and tips his head toward a woman across the aisle. She has red hair down to her waist and wears a gray dress that almost touches the floor. I like red hair. My dad’s is. Mine is red-brown. Her arms and face reach toward the ceiling. Tears are coming down her cheeks. She moves back and forth in time with the music. Everyone keeps singing the same song, over and over, slower and slower. More people start crying and swaying back and forth.

Judy sits down but stays stiff. She looks confused. Mikey told me they were presbatorians, or something like that. It’s another kind of church. There must be lots of kinds, ‘cause Mom’s been taking me to a lot of them. Bible, Assemblies, Methodusts, then she heard about this one having a healing service.

Eve leans over and whispers to Mikey and me. “They’re getting into the spirit so someone will get healed tonight.”

Mikey tries not to giggle.

His mom pokes her elbow into his side.

I’m confused. I don’t understand this getting in the spirit stuff. Why is everyone crying if someone’s going to get healed? Wouldn’t they be happy? How do they know who’s going to be healed? Besides Mikey, am I the only disabled person here? I kind of wish I wasn’t one right now. That way, I could stand up and look around to see if anyone else is. Does it hurt when you get healed? Would it be like one big spazz, then you’d be all better? What would it be like for Mikey? Would he feel his muscles get all strong again?

I wish Dad was here. He’s good at explaining things. He doesn’t go to church much. He says, “I’m a holiday Catholic, Easter and Christmas is enough, especially after twelve years of nuns and priests.”

The other day, I heard him tell Mom she was taking this borned again stuff too seriously. This morning at breakfast, he got upset when Mom told him she and Judy were taking us to a healing service.

Dad hardly ever gets upset, but he pushed his chair back hard and almost yelled. “Krys, this is going too far. He’s fine just the way he is.”

I thought he was going to say more, then he looked at Mikey and marched outside to the pool and started getting it ready for winter.

I wish Mikey could get healed. He’s the one who will get worser and worser, then die. I’ll have some surgeries and get a little better. I’ll probably live a long time in my chair.

After lots more singing, some people talk with weird words, Eve whispers they’re speaking in tongues. I hear a man ask anyone who wants to be healed to come down front. My wheelchair is back by the coat rack, so even if I wanted to, how was I going to get down there?

Mom leans over Judy and Mikey. “Nate, do you want me to get you in your chair and take you down front?”

I jerk. My eyes get big. I shake my head back and forth lots. I want to say hell no, but I don’t. “No,” I whisper kind of loud. “I’m not going anywhere in front of all these people.”

Mom sits back down. I think she looks sad. I feel bad, maybe I should have let her, that’s what she brought me here for.

An old man pushes an old woman in a wheelchair by our pew. She’s wrapped up in a blanket. Her head flops to one side. Her eyes are kind of funny and her lips have got spit bubbles coming out. Her feet stick out in front and she has pink fluffy slippers on. The healing man prays real loud and talks about the stripes of Jesus healing her. I hear him say he’s anointing her with oil. He repeats everything all over, but louder. Next, he asks if there is anyone else who needs healing. I’m not sure the old lady got healed, ‘cause she didn’t come back up the aisle walking.

All at once, Eve stands up and points down at me and Mikey. Part of me wants to head butt her for pointing us out. Part of me is scared as heck.

“Pray,” Eve hisses. “Close your eyes and pray hard. You too, Mikey. Pray!”

I put my head down and close my eyes. How do you pray? Does it have to be out loud? That would be crazy with other people next to me, especially Mikey. So, I think about walking and running and swimming by myself and not being in a wheelchair. I guess that would be nice. And then, no one would have to wipe my butt or feed me, that would be good for my family. But they don’t seem to mind, they never complain. It all seems regular to us. Mom’s the only one who wants me normal, but it’s not ‘cause she’s tired of helping me. I think she feels sorry for me, or sometimes guilty, which I don’t understand.

Someone touches me and I jerk. I open my eyes and the healing man is leaning over us. He’s old and fat. His shirt button behind his tie is popped off. He’s got stains on his tie and shirt and suit coat. He says all the same things over us he did for the old woman. I get tired after a while, especially the louder he yells.

I peek at Mikey. He won’t look back, which is probably good. We might start laughing. He looks a little scared and worried.

His mom sits straight as a stick. She looks upset and don’t even look down at us, just stares out at nothing.

I can’t see my mom, but I can hear her. She’s whispering and crying real quiet.

The man dabs some oil on my forehead and my arms and legs. “Everything is in God’s timing, so be prepared for a miracle at home,” he says.

He does the same to Mikey and goes back up front. They take an offering. At last they sing the last song, another long one.

The service is over, and my butt hurts from sitting on the hard seat. I don’t think nobody got healed. No one is talking about it. I think if I was healed, or Mikey, everyone would be excited for us. He tried, the preacher healing man really did try hard.

Judy lights a cigarette as soon as we get out the door. Mikey says she only smokes outside and when she’s nervous.

Mom straps me in the car and loads the chair. She kisses me, then asks in a croaky voice, “Nate, honey, do you feel any different?”

I think a minute. I know she really wants me to feel something different. I tell my brain to tell my left hand to move, but it only jerks a little, like it always does. I wiggle my toes, or try, as usual, they don’t do much, instead my legs and body spazzes. I look at her and shake my head. I look away, so I don’t see how she looks, but I think it’s sad. I feel bad, but I can’t tell her something when it ain’t true, that’s lying. Once she washed my mouth out with soap for lying.

Mom closes my door and goes over by Judy, who’s smoking by her door. Mikey climbs in and leans over close to me, his face almost touches mine. “I think that man was crazy! I was scared you’d get healed and I wouldn’t. Then you could walk and everything and make new friends, normal friends, and not have time for me. That’s why I didn’t look at you in church. Are you mad because I wasn’t praying you’d be healed?”

I kiss his cheek. “Mikey, you’re my bestest.”

He joins in, “And bestest and bestest friend in the whole universe.”

We giggle, he slides over and hooks his seatbelt.

Mikey’s door is still open, and he can see our moms. “They’re hugging. I think they’re both crying a little. Your mom’s saying she feels guilty ‘cuz it’s her fault you’re handicapped.”

“It is not! Some cord was wrapped around my neck when I got borned. She didn’t do it on purpose. What’s your mom saying?”

“That she’s scared I’m going to die young. She doesn’t think church or God will heal me and it makes her mad.”

He puts his finger up for me to stay quiet.

“Nate, your mom is saying she doesn’t understand why God didn’t heal both of us tonight, especially after all her praying. Maybe we’ll get healed at home.”

He waits some more, listening to our moms. “My mom said she isn’t going to hold her breath and your mom shouldn’t either. Now they’re hugging tight.”

We’re quiet. “Mikey, I’m scared you will die young, too.” Mikey reaches over and touches my shoulder. I think he’d like to slide over and give me a hug, but he’s buckled in and getting tired out.

“I’m okay. You’re okay. Dad says we have to take it one day at a time. I think that means not to worry. So, I’m not.” We don’t talk anymore.

Judy closes Mikey’s door and climbs in the front seat. Mom gets in and starts the car. It’s cool when the car starts, it’s got a big engine. It’s an old Jag with a stick shift, but it’s in good condition. Mom’s always getting it washed and waxed. Sometimes Mom jokes she should have been a race car driver instead of a CPA and owning her own accounting business. Both our moms have tears on their cheeks, but they don’t seem as sad anymore.

Judy wipes her eyes, turns and looks back at us. She smiles extra big, like she’s making herself happy. “How are you boys doing?”

Mikey looks over at me, shrugs his shoulders and winks. I don’t know what he’s going to say, but I’m ready to laugh. In a deep voice, he says like he’s an announcer or something, “Well, Mrs. Howard, I found that to be an interesting way to spend a Sunday afternoon. Almost better than watching the Bears.”

He and I giggle. Both our moms look like they want to laugh and cry at the same time. Judy stretches her arm between the seats and pats Mikey on the leg. “Oh, Mikey, you always see the humor in everything, don’t you? I like that about you and wish I was more like you instead of worrying all the time.”

Mikey pats her hand back, then looks out the window for a while. It’s quiet till Mom turns on orchestra music, real low.

After a while, Mom clears her throat. “Nate, are you feeling anything different happening? Are you all right?” Her voice sounds shaky, but not as much as before.

“Ma.” I say Ma when I want to tease her or get her attention. She doesn’t like me calling her that. “Ma, I’m fine, at least I’m not worse or anything.”

“That’s nice, honey. I’m…”

“Hey, Ma? That man’s breath smelled really gross. Maybe he was constipated or needed to brush his teeth. I thought I was going to pass out before I could get healed.”

Mikey looks at me like he doesn’t know what to do. Judy snorts like she sucked milk up her nose. “Oh my God! Krys, you look like you’re going to lose it. Pull over someplace. Quick, there’s a McDonalds.”

Mom whips the Jag into Mickey D’s, puts the shift in neutral and yanks up the parking brake. She and Judy burst out laughing so hard tears run down their faces and they can hardly breathe.

“Oh my God, Nate. What cabbage plant did we find you under?”

I’m glad I got Mom to laugh hard. I hope she forgets about getting me healed. My bony butt still hurts.